We are finally getting the heck outta here! Neurosurgery came by this morning and examined Dominic, who is doing great today. No fevers, no more illness and only a little irritability from the shunt (which is normal). They said they'd discuss and see if he could go home today or tomorrow. The PA came back 1/2 hour later and said "how do you feel about going home?" I was sort of taken off guard but was naturally thrilled. So, they are busy getting all his discharge papers ready. We're planning on spending the night at Mike's parents' house, just to be close enough in case something happens tonight. But then we will FINALLY head home tomorrow! I've never been so excited to go home. He'll still be on three seizure meds (Keppra, Vimpat and Klonopin) but once we see Dr. Chugani in 6-8 weeks for follow-up, he'll start weaning the Vimpat, then shortly after that, the Klonopin. Then he should only be on Keppra for a year or so! He still has that nasty sore on the back of his neck, but the Wound Care nurse says it probably won't be healed over for about a month. So we still need to clean it and cover it for awhile. He still has his stitches in from the shunt operation, but we can just go somewhere in Grand Rapids to have them removed. We'll also need to find a pediatric neurosurgeon in Grand Rapids who can closely follow Dominic now that he has a shunt. After talking to the PA yesterday, I'm realizing this is going to be a lifelong thing. Most kids need at least a couple shunt revisions in their life. We just hope he won't need one for at least several years.
 |
Getting ready to go home!! |
We are so anxious to get home, sleep in our own beds and spend time as a family. We're all in need of some rest and quality time together. Dr. Chugani came down here a few minutes ago just to see Dominic before he left and is confident that Dominic will thrive. He said we should expect amazing things from him over the next few months. Personally, I already think he's done some pretty amazing things, but I can't wait to see what his future holds!
Yay! Praise God!
ReplyDeleteCongratulations on heading home! May God continue to bless your whole family. Looking forward to continued "good news" posts.
ReplyDeleteBarry (Adam Timm's Dad)
Hi Laura,
ReplyDeleteJust wanted to let you know your blog was shared with me from my mom the other week, and I have been reading through getting caught up on your little medical miracle! As a pediatric nurse, I have to praise you for being such a good mom and being so up to date on all the terminology, medication, and hoopla of the medical world. You and Mike seem to be doing great, although I know each day brings new challenges. Will continue to pray for Dominic and his recovery, he is such a cutie!
Lots of love and prayers,
Julie Richard (Bailin)
SO happy for you to be home. Enjoy each other. Praying for a smooth transition back to "normal" Love you!
ReplyDeleteWhat a beautiful picture of the three of you! Yeah! Heading home!!
ReplyDeleteThank you all! We are doing great at home!
ReplyDelete