And don't come back another day! Dominic has pretty consistently had seizures every day for the past 10 days. Mike and I are getting pretty concerned as they've upped his meds three times in those 10 days and he still continues to have seizures. And only one of those ten days has he had them during the day. They are mostly at night. So, he is back to sleeping in our room, which means we're up several times a night, each time he has a seizure. Dr. Arndt was gone all last week at a conference so I never heard from him. The other doctors in the clinic didn't want to add a new med without consulting with Arndt, so they just upped his current ones, which obviously isn't working. I'm anxious to speak with Dr. Arndt on Monday and figure out what the heck is going on with Dominic. The seizures, while he's not having them all day long really take a lot out of him. Plus the higher doses of the meds make him really tired and lethargic. It seems to set him back in PT and OT, which is hard to see after all the progress he's made.
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| You know you're tired when you fall asleep jumping |
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| So sleepy and lethargic :o( |
The past few weeks have been so exhausting, draining and frustrating. On top of the seizures, Dominic has cut his first two teeth, which is always a joy. He also randomly threw up last Sunday and Tuesday. He doesn't seem sick so it makes me wonder if he's allergic to a certain food. Mike and I are at a loss as to what to do. We feel so helpless. We just keep praying that the seizures will stop and we'll figure out the right concoction of meds so that this kid could just cut a break already! God has never failed us before and we know he has his arms wrapped around Dominic right now. He'll get us through this and I have no doubt Dominic will get better. It's just hard to keep our spirits up in the meantime.
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