Wednesday, June 1, 2011

Rockin' and a Rollin'

Not much has changed since last week except that Dominic is officially rolling over! He had been rolling occasionally when enticed by a toy at PT, but not consistently. He probably rolled on his own about 10-12 times today. I finally caught it on video, excuse the talking in the background. Sometimes I forget my camera has a microphone :o) The first video is an attempt, of which there were many. You can see what a stinker he is, as he sticks his tongue out at me. The second is him finally rolling. You can see how excited he gets (notice the leg kick)!





In other news, I have been emailing back and forth with Dr. Chugani about getting the surgery process started. Dominic has been on Zonegran for over a week and has had seizures the last three days. It can take a full two weeks to know whether or not it's working, but it's not a great sign that he's on 4 seizure meds and still having seizures. So, Dr. Chugani thinks it's best to start scheduling all the testing that needs to be done. I'm curious to see how long this process takes and wondering when he'll actually have surgery. I'm also looking into making a trip to the Cleveland Clinic or UCLA for a second opinion.

Last week we lowered his Triliptel and started him on Zantac and the vomiting has stopped, which is great news. We're sort of assuming that his low sodium levels were causing the vomiting, so lowering the Triliptel seems to have solved the problem. We have also started him on Zyrtec, as he has pretty bad allergies which have kept him up the past few nights. I keep wondering if I will ever sleep through the night again. Between Dominic up with seizures or allergies and Mitchell up having to go potty or having bad dreams (every night!), Mike and I never get much rest. But, what do they say? You can sleep when you're dead? Great, can't wait for that...

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