365 Days and Counting

Dominic is 365 days old today. A lot of the past year has been measured in days. The number of days he was having seizures before he was first hospitalized (3), days it took for the ACTH to stop the spasms (7), total number of days he's spent in the hospital (30), and the number of days he's been seizure free (59). We feel incredibly lucky to have our little Dominic so happy and thriving after what he's been through over the past year. To be honest, 6 months ago I didn't see how we were going to make it to this day. In the thick of everything, it was hard to see a light at the end of the tunnel. But here we are! We have so many reasons to celebrate today. Dominic has been an incredible addition to our family and we are looking forward to another great year with him - hopefully with less drama, tears, stress, meds, and hospital stays. 

Dominic's birthday started off with a bang with an EEG at 7:45 this morning, followed by PT at 9:00. The EEG is to rule out ANY electrical activity in the remaining part of his brain. If all checks out, we'll start weaning the Clonazepam in about a week or so. That will leave him on ONE seizure med. Woo hoo! He's such a trouper and does everything with a smile on his sweet little face. His PT, Robin, put him on the treadmill again today and I caught a couple videos of it. He seems to like it! She is also going to set us up with a gait trainer at home (similar to the one below) so that Dominic can spend more time on his feet. Therapists hate the jumparoos and exesaucers because of their position in them.

What a champ at 7:45 am

He's realized he can pull them off his head now

Gait trainer, similar to the one Dominic will get

Mitchell, Dominic and I met Dad for a birthday lunch downtown and I baked him a little cake (which I was not prepared for when I frosted it, hence the Christmas sprinkles...woops) for tonight after we open his presents. We'll be having a bigger celebration this weekend when we celebrate a combined 1st birthday with his cousin Dylan. Should be a lot of fun! Cheers to another year!

The boys at lunch

The boys playing with one of Dominic's presents. I bought this before I knew he was getting an adaptive one.

Not sure at first about the cake

Yeah, it's good