Walk On

Wow, two posts in two weeks! It's been awhile since that's happened. I usually don't post anything if there is nothing new to report. Therefore, I have news! Dominic is walking!! Not all the time, he still knows scooting is much faster. But he is walking up a storm! Here is a short video from the Neurologist office this past week.



As I sit here writing this, he is walking towards me. Today he moved from the TV in the corner to more than halfway to the dining room. This is by far the farthest he's walked on his own. It's so cute because you can see how proud of himself he is!

In other news, we had a pretty busy week. Starting OT on Monday - he had a good day and didn't fight too hard. Still working to get him to use his right hand which is doing more of. Sarah said he was playing the xylophone with both hands (I don't know this first hand because I'm not allowed back there anymore. Boo. I guess I was too much of a distraction for him). Tuesday we had a renal ultrasound, blood work, and a Nephrologist appointment. All is good on the kidney stone front, nothing has changed. We also saw the Neurologist on Thursday. Not going to lie, I miss Dr. Arndt a lot. But considering how well Dominic is doing, I'm very comfortable seeing another doctor at DeVos from now on. Dominic has been seizure-free since his surgery, which has been exactly a year and a half today! When we saw Dr. Chugani in the fall, he said once he has an extended EEG and everything looks normal, we can take him off his last seizure med (Keppra). So, we are scheduling the 48-hour EEG at the EMU (Epilepsy Monitoring Unit) here in GR sometime in April! I can't even imagine what it will be like to have him off all seizure meds! Two years ago at this time he was still having Infantile Spasms. It's incredible how much has changed in past two years. All I can say is PRAISE GOD!!! So, we're looking forward to the EEG in a couple months.

He was a champ for the ultrasound. No tears this time!

Fun times at DeVos

This morning we had a new PT evaluation. Since we took a break for a few months, Dominic needed a whole new prescription and evaluation. While he is walking quite a bit, he has a definite limp and definitely favors his left foot. It could be that his hips are tight or because he scoots and leans to the left side so much, his butt muscles and hip muscles are uneven. So, she gave me some stretches to do at home and they will focus on that when he starts up his weekly PT sessions again.

Mitchell has had some rough times of his own! The poor kid got his mother's teeth and got is fourth and hopefully last baby root canal this week. He's also had four fillings in the past month. The poor thing has four silver crowns!!

And then there's me - the gimp. Ankle is doing much better. Still swollen and black and blue, but feeling better and I was off crutches this week. I even made it back to the gym. I was going stir crazy!

This next week is pretty low key for us. We are FINALLY having my birthday dinner at Ruth's Chris steakhouse on Thursday after Mitchell's school conference. Then we are excited for the Hope-Calvin basketball game this weekend (we attend each year with a crew from PNC). Should be fun! But I am super excited that I will be in Florida TWO weeks. My mom and I are taking a quick trip to their place on the Island. Mike has Monday off, so it will be an amazing long weekend in the sun with my mum. Can't wait!