Not sure if anyone was able to catch Nightline last night, but it was about the incredible story of a one year old boy, Evan, who suffered from Infantile Spasms and had a radical surgery to remove half his brain to stop the seizures. I thought his story sounded familiar, and sure enough I got an email from Evan's dad this morning with a link to the story, as he is from the IS support group I recently joined online. The surgery is called a hemispherectomy and this is the surgery that Dominic will be evaluated for should the ACTH not work. To watch Evan's story has so far been like a mirror of Dominic's. It's pretty incredible. We are hoping to not have to pursue the surgery route, but should we have to, Evan's story definitely gives us hope. Here is a link to the story on ABC News or you can view a short video clip below. Check it out!
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We are saying our prayers for Dominic here in NJ.
ReplyDeleteThe Baker's.
God bless.
Wow. I'm not sure I can handle watching the clip but that is an amazing story! I'm so glad you have found community with people going through the same thing.
ReplyDeleteabby