We had sort of a rough weekend. After Dominic had two simple partial seizures last Monday, we thought we had them under control with the higher dose of Keppra. Unfortunately, Saturday morning I woke up to Dominic screaming. I went in and found him in his crib having a seizure. I thought it was probably just a fluke and gave him a little extra Keppra, as instructed by Dr. Arndt. He had another one at 10:30 and another one at 1:30 before I finally called the neurology clinic. The doctor on call said to give him a Clonazapam tablet, which are used to stop a series of seizures and to call back if he had more. He was okay the rest of the night, a bit sleepy and lethargic, but no more seizures. We had him sleep in our room last night to make sure he didn't have any more. He woke up and had a seizure at 4:00 am and then again at 7:30. I called the doctor again and he said to give another Clonazapam this morning and then again this afternoon. If he continues having seizures, he'd have to go into the hospital and be given a med load through an IV. He had another seizure at 9:30 am but not one since. Hopefully we are in the clear. But, should we need to go into the hospital, I'm having them page Dr. Arndt ASAP.
Here is a video of one of his complex partial seizures. His eyes have never done the back and forth thing before, I'm not sure what that means. Please ignore the commentary, I take these videos to show the doctor and don't mean to talk so much when it's happening, I just freak out. I am planning on talking with Dr.Arndt tomorrow. It looks like we'll have to change up his meds, the Keppra doesn't seem to be working anymore. I'd love to go back to Topamax since that kept them away for months, but they gave him kidney stones. Don't want to make those worse. Hopefully we have a better night tonight than last.
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Oh Jurgs- this just melts my heart- I couldn't even watch the whole thing. I'm exhausted with my 2, and can't imagine what it's like with Dominic's needs. You're in my prayers.
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