To Recap the Week

Overall, it was a pretty good week. We saw the Opthamologist on Wednesday and she said at this point there isn't any peripheral vision loss (from the Vigabatrin) and since he is coming off of it, that should never be an issue. However, he might need glasses in a few months. She said right now his prescription is +5 and a normal baby his age is about a +2. We'll go back in 5-6 months and if he's still at a 5+ she'll put him in glasses. It's not that he can't see, he's just a bit farsighted. So, if she doesn't put him in glasses, it can affect his development. So, we'll see what happens when we go back.

Mama and her boys

He had his BAER hearing test on Thursday and much to my surprise, it was NORMAL! With everyone's concern about his hearing, I was very surprised there wasn't some sort of impairment. But this test is very accurate and the audiologist said it was normal. He might not always respond to sounds the way he should because of his delayed development. So, this is great news to know he can hear. He's just sort of a stinker and picks and chooses who and what he listens to. I wish I could do that sometimes :o)

Friday Dominic had his occupational therapy evaluation. Mike had to take him because I thought it would be fun to come down with a horrible case of the stomach flu. That was a fun Thursday night and Friday. I'm still recovering. So, my sweet husband took the day off and took Dominic to his OT appointment. For now, they want to see him once a week in addition to the OT he gets through Early On. He will also be evaluated for physical therapy on the 28th. The goal for now is to strengthen his right side. They put some kineseo tape on his shoulder, which I'm told is sort of like a cortisone patch. It's supposed to stimulate the muscles and they'll change that once a week.

Like I said, overall a good week (minus the stomach flu). Next week is just as busy. We meet with the Metabolic specialist on Monday in Ann Arbor at U of M. Tuesday we see Dr. Arndt again and Wednesday we see the nephrologist (for the kidney stones). Hopefully we continue to get good news!