Detroit EEG - Day 2

Today was long, mostly because we've been confined to this small room for nearly 35 hours. Dominic has been super cranky. He was up all night having seizures and can't sleep during the day because half of the slats are missing from the window's vertical blinds. He does not want to be put down and I haven't nursed him this much since he was 2 months old! It seems to be the only way to calm him down. Although Mamma did rock him for awhile today to give me a break. Because he had so many seizures last night, they decided they had recorded enough seizure activity and wanted to put him back at his regular dose of meds this morning. They didn't want him to have any more seizures than necessary but still wanted to keep him hooked up to the EEG. So, we've spent the majority of our day reading, playing cards, playing with Dominic, feeding Dominic and eating. I've never looked so forward to my next meal before, simply because it was something to do. I think we're all ready to get outta here tomorrow. The PET scan is scheduled for 8:00 am, which means we'll get out of here around 10:00. Not too bad.

Cute boy

In his new "Hugh Hefner" robe from Mamma

Thinking he's hilarious

I was so anxious for so many weeks leading up to this, and now it's almost over and I'm at such peace right now. I still don't know what Dr. Chugani will have to say - he may want to wait awhile to have the surgery, he may think that because Dominic is still developing, the risks of surgery might outweigh the benefits. Or, they might find seizure activity on both sides of the brain, which would mean surgery would not be a solution. There are a lot of things he could say. But I know that whatever he says and whatever the next steps are, I am at peace. We are just praying now that the PET goes well tomorrow and that they would indeed locate the specific area where the seizures are coming from and that surgery would be the best solution. But in the end, it's all in God's hands.