The Final Countdown

3...MORE...DAYS. We can't wait. The last few days were awful. In our attempt to wean Dominic from Klonopin, he ended up having more seizures than he's had in awhile. It started Tuesday night and he had about 5 or 6 between 10-3 am. Then he started having them every 1/2 hour, then every 15 minutes. I emailed Dr. Chugani at 6 am and didn't know what to do. We had given him Diastat at 10:30 pm and a Klonopin at 3:00 am and he still hadn't stopped seizing. In fact, they had gotten worse. He promptly responded and thought the ER was the next step. I called Dr. Arndt's office because I did not want to deal with strolling into the ER and having to explain Dominic's situation to every nurse, intern, resident, and attending on the floor. I wanted them to call ahead and tell them we were coming and what the plan of action was. I've spent way too many wasted hours in the ER, I wasn't about to do it again. Dr. Arndt really wanted to keep him out of there as well, so he suggested an extra dose of Keppra. If that didn't work, take him in. Thank the Lord! After he took the Keppra he was out for the next 5 hours, but he hasn't had a seizure since. My poor mother-in-law dropped everything to come up here yesterday in case we needed to be in the hospital and as it turns out, we didn't. But I'm not complaining! We're just trying to get through the next 3 days and keep the seizures at bay until the surgery. This was just another reminder that this surgery is a must. There are no other options. Even "emergency" meds don't stop his seizures. I have a hard time even wrapping my head around what life will be like without seizures. Ah, I can't wait.

It's all starting to sink in. Today was Mike's last day of work for awhile. He's planning on taking a medical leave, although it's all sort of up in the air at this point. Seeing that he's the only source of income, we don't want him to take too much time off. But we don't know how long we'll be there. That's sort of our answer to everything these days - "we dont' know".  Everything is up in the air and everything depends on how Dominic does post-surgery. We're just living one day at a time right now, and I'm okay with that.

We continue to ask for prayers as Tuesday approaches. Prayers for safe travels for family, prayers for the doctors, nurses and everyone caring for Dominic. Prayers for peace and comfort for Mike and I. Prayers for Mitchell as he deals with Mom and Dad being gone and being shuffled around for who knows how long. Prayers for the wonderful people watching Mitchell :o) And prayers for the future. We don't know what to expect or what our life will look like a week from now, a month from now, or a year from now. We thank everyone for the continued love, prayers and support. We don't know how we could have gotten through all this, or how we will get through what is to come, without all the amazing people who have walked beside us the whole way.