Hurry Up!

All dressed up

This surgery can't come quick enough! We have had two really bad days this past week. Wednesday, Dominic had 15 seizures before 1:00 pm. During most of these, he gagged or vomited and his eyes rolled rapidly back and forth. I had to give him an extra dose of Keppra and Clonopin and if he had any more seizures, he needed to be take to the ER. Fortunately, after another Clonopin, his seizures stopped. He was okay for a couple more days, only having a few seizures each day. Then last night was a nightmare. We were at my cousin's wedding two hours away and he had seizures ALL NIGHT LONG. By all night, I mean from 2:00 am until 7:00 am he had at least 12 seizures. Some as close as 3 minutes apart. We gave him a second Clonopin dose at 3:00 am and then a second dose of Keppra at 4:30 am. By 7:00, we finally called Neurology because we didn't know what to do. We were told if he had one more seizure to give him Diastat (which is a shot up the butt) and if he had more after that, to take him to the ER. Thank the good Lord that he did not have another seizure after that, so we did not need to give him Diastat. He actually had a really good day after that. He was super tired and lethargic because of all the drugs, but no more seizures. I feel like we are just trying to survive through the next month when he'll finally have surgery. Days (and nights) like this just really reaffirm our decision to have this surgery.

I love this little guy!

The Jurgensen Clan

Our Family

All tuckered out at the reception

People have questioned whether we really need to do this quite yet or why we didn't have a second opinion. But both Mike and I feel that this is EXACTLY where God wants us. He has put each doctor in our lives for a reason and we feel totally blessed that we got in to see Dr. Chugani so quickly and were able to schedule the surgery so quickly. It's a very hard decision to decide that the best thing you can do for your baby is to put him under the knife, risk his life, and cut out his brain. But this is the point we are at and we feel so at peace with this decision. We just need the peace and patience to get through the next month!