Heading Home

Thankfully, the plan is to head home today. Dominic got a head ultrasound last night that revealed the ventricles in his brain are a little asymmetrical. This doesn't necessarily mean anything, so they aren't that concerned. No brain bleeding, no masses, no stroke - so this is really good. He is much more alert today and moving around normally. Well, as normal as possible considering he is hooked up to monitors and an IV. 

Sleeping during the day, up all night

He has had high blood pressure since Wednesday, so he had more blood work and an ultrasound on his kidneys this morning. Everything structurally looked good with his kidneys, but they found that he has kidney stones. This may be the reason he has been so fussy the last couple weeks :o) We will follow-up with his pediatrician next week to see if this requires any treatment or if he has to just let them pass. Won't that be fun! 

Another EEG

They are pretty sure the seizures were caused by illness/fever, but they can't be sure. He has not had a seizure since we got here on Wednesday. They are sending us home with Diastat, which is an emergency medication, should he have another seizure that lasts more than five minutes. It's a gel that is given rectally; lucky Dominic. Again, we are hoping this is nothing new, but just related to illness. Of course, it worries Mike and I that this is something he'll always have to deal with. Are we going to land back in the ER very cold and flu season? Are we going to have to worry wherever we go? Vacations? School? We sure hope not.

Got Cereal?

A speech therapist came for a consult this afternoon regarding feeding. Mike and I weren't sure with his developmental delays and the fact that he can't hold up his head if eating solids would be a problem. Most babies his age are starting on rice cereal and baby food. I'm not all that concerned that he starts on solids at this point since he's a champ and breastfeeding. But, the therapist showed us the best way to feed him and the best positions, so this was a fun little event. He liked it for the most part. Just like his big brother, thumb went right in the mouth. 

Trying cereal for the first time

This has already been such a long road since November, the fact that he hadn't had a seizure or spasm in over a month was so encouraging. I think we felt like the worst was behind us. After talking to the neurologist this morning, it sounds like this could very well be what our life will be like for a long time. It's hard to say, everyone responds differently to meds, everyone develops differently, and the brain is so hard to understand. So, maybe he'll never have another seizure again, but chances are he will and this won't be our last stay at "Hotel DeVos". All we can do is keep moving forward and be grateful for each day he doesn't have a seizure.

Happy to hear we're heading home!