Just when you think things can't get any worse, they do. Just when you think you can't possibly handle any more bad news, you get it. We had an MRI for Dominic today that they did really just to make sure the hematoma in his brain that they found on the CT scan from last week was going down and to pinpoint exactly where it was and how big it was. After a long day of forcing my 4 month old to fast for 6 hours, enduring sedation, and spending 4 hours in the hospital this afternoon, I was ready to go home and enjoy a relaxing weekend. Within half an hour of arriving home, I received a call from Peds Neurology. They had reviewed his MRI. Prior to our discharge today, I was told I wouldn't get the results for 4-6 days. So, I knew when I got the call it wasn't good. The results of his MRI showed that he has significant brain damage in a deeper part of the brain, totally a separate issue from the hematoma. In most cases it's caused by an injury or stroke, but could also be from a lack of oxygen. The neuro on call thought it may be an underlying metabolic issue that caused the stroke/lack of oxygen/damage. Dominic has already been tested for hundreds of metabolic disorders, so maybe it's one they haven't tested for yet. They really don't know what's going on but are concerned this could happen again and cause more damage. So, he told us to head into the hospital to be admitted so they could monitor and evaluate him. The neuro on call will see him tomorrow morning and he wants to review all scans, ultrasounds, test results, medical history etc. to see if they can figure out what the heck is going on with him.
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Guess who's back, back again |
I honestly didn't know I could physically handle more bad news, but here I sit once again in the hospital with my little baby, waiting for someone to find answers. Somehow God gives you strength when you just don't think you can endure anything more. I guess it's a huge blessing they did the MRI today, since it was originally scheduled for March 15th. But at the same time, it's incredibly difficult to be told that your baby has brain damage.
I continue to ask for prayers as we now have to deal with this new issue. How to treat the damage he has and how to prevent any further damage. It seems that every time things seem to be turning around, we end up back in here with another problem. I don't know how much more I can take...
I will be praying! Look how adorable he is!
ReplyDeleteWe're praying for you! We may be headed your way tomorrow....we will talk later.
ReplyDeleteI am sorry to hear your boy has to be such a mystery man! Hang in there, girl. We'll keep praying for you.
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