Within five minutes of my post yesterday, Dominic had a seizure. It was a complex partial, that lasted about 30 seconds. We haven't seen these since he was first admitted around Thanksgiving. His eyes rolled back, his lip started quivering and his right arm and leg clenched up. I immediately called the Neurologist and he thought it might have had something to do with lowering his Vigabatrin the day before, although we didn't go down all that much. So, last night we went back up to his normal dose. Then, this morning, I woke up and heard Dominic breathing heavy and went to get him. He was having another seizure. This time, his eyes would roll back, then open and roll to the side and fixate. His entire right side was limp but his hand and foot would twitch every so often. He vomited twice. After 5 minutes, I called the Neurologist. I had never seen a seizure last so long. The nurse I spoke with told me to immediately call 911. They needed to send an ambulance to break the seizure right away. The ambulance and fire truck arrived pretty quickly (Mitchell was thrilled to see them in front of our house) and they checked him out. Apparently he's two young to receive the medication they would have used to stop the seizure, so they loaded him up in the ambulance and tried to start an IV (but couldn't) and we were on our way to the hospital.
He was still having the seizure when we arrived in the emergency room, so it lasted about half an hour. He seemed to go in and out of it, but it never really stopped at any point during that time. It's now 7:15 pm and we've been here since 9:30 am and he hasn't had another seizure. He had a low grade fever when we arrived here and has been having diarrhea. They think he may have a virus. Apparently if you are someone who is susceptible to seizures, any kind of virus or illness can lower your seizure threshold and you may have seizures. So, they aren't sure if the two seizures were from lowering the medication, a virus, a combination of the two, or something totally new. At this point they are monitoring him, pumping him with fluids and he will see the Neurologist tomorrow to decide what to do. He has been really sleepy and lethargic today, but I guess having a seizure for that long can take a lot out of you. It's funny being back here for the third time in 2 1/2 months, I know all the nurses and they know Dominic by name. They are all really awesome and take such good care of us. On a good note, if we have to be in here, at least we're in the new hospital this time. There is actually room for two on the pull-out bed here! Plus, the floor to ceiling windows bring in a little sunshine. We just hope to never have to see this place again.
Mike and I are hoping and praying that this is an isolated incident and that he's not developing another neurological issue. Keep the prayers coming, we really appreciate them, and we know they help. When one or more are gathered in His name, he hears. And I'm pretty sure we've got thousands of people praying. Thank you all so much!
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I am so sorry that Dominic and your family had to experience this. My family and I are praying for him, and I will carry you all in my heart as a special intention today. Thank you for your blog, for sharing your faith, and for letting us know how to best pray for all of you. God bless you!
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